Monday, May 05, 2008

Big day: people, the return of family and badminton

Guess what I learned today? It’s May.

Don't worry, this isn’t going to be a post endlessly about how confused I was today or strange things I said, though there will be enough of that. No, this is about the re-emergence of what Linda confused the hell out of me by saying, “Let’s go see your friends” (“I have friends?” A: “Yes, they are in the park”). Anyway, I don’t know where he went for winter (Las Vegas comes to mind), but here is a character which I do remember....the return of Psycho! Yup, he’s back and he ran across an entire field, leapt into my lap and then took off. And as usual, he also stole from Linda, literally, but that will be in the video, hopefully tomorrow. But this is all later, when Linda convinced me to go outside. As you see, I am a changed, twisted and altered woman. Poor, poor Beth, living out that existence, among the trees and green and squirrels.
But first I actually have to get to the afternoon. I had my first dream since going into hospital Saturday night. Only it wasn’t a dream, it was a movie, or specificially, I am Legend, with Will Smith. That was my dream, watching I Am Legend, so now I remember it again (and the odd fear North Americans have that if they don’t keep CONTROL on every aspect of nature that in five years there will be packs of lions and gazelle in New York City – Wha?). Anyway, then my carer came, and I kind of remembered her, but then she would ask me questions which were very open ended (meaning I did not know all the answer), which confused me. Like, “Are we having a shower today?” Me: “Do we usually shower together?”

Also, when I was to wash Area 51, I told her “I’m going upstairs.” Which made her open the curtain to stare at me. Also there were sticky tabs all over me from the hospital so I said, “Someone littered on me.” Stare. “They didn’t clean up after the picnic.”

Then after the shower she had me on the walker seat and asked, “Are you okay to do all your hair by yourself?” Now, how can I know that? I cannot know that.

So I said, “Everything is…………..illuminated.” Which meant, I will find out, I think I am okay (there were some words or phrases I use which seem to throw people, as well as words I can’t find).

She stared and looked into my eyes and said, “Are you OKAY to be by yourself?

I stared back in her eyes and said, “EVERYTHING is……ILLUMINATED!”

She got a strange look and said, “I’ll be in the kitchen, call me if you need me.”

From my blog and Linda it seems I fought Blue Cross until I literally collapsed, but today the person Melanie called and Linda talked to her. It seems all that she needs is a letter from my Doctor sent to her and she will get my mattress taken care of and I will have a hospital bed. Looking back at the blog and talking to Linda I think that I was going to “blow” soon anyway because I was having at least two systems fail repeatedly each day including passing out twice a day from Thursday eve to Saturday. So if not Saturday then a day soon, like Sunday. I guess I have to try this word which has no meaning for me, “Relax” because there are always people and things that are in motion. How do I stop that? Seriously?

From there we went to the Park which was good because squirrels don’t have a long list of questions or assume that you have a long relationship or mind if you say, “Here Kitty” or whatever you want. If you smell of peanuts, they want to know you. There were a lot of workers around scaring the squirrels but I met one named Spasm (because he seemed to have some sort of back flip every time he got CLOSE to getting a peanut, so lots of energy but few peanuts) and Peggy.

Peggy is by far the most trusting squirrel I have ever met. I called her Peggy because she was pregnant (preggy!), and she literally ripped the shell apart in the same way women in the late stages attack whatever food their bodies are telling them to get. Never get between a pregnant woman and her Hagen Daaz. So Peggy climbed up into my lap a few times and then was like, “Oh, for goodness sakes, it just isn’t worth the effort anymore” and she just sat there chowing down on peanuts and then looking up at me when she was done with a “HELLO! Hit me, pregnant squirrel here!” so I fed her and she just sat there.
In fact it got to the point that while she was sitting there I was feeding other squirrels. Here you can see, by my hand I am tossing the grey squirrel a peanut and Peggy is still there. Indeed, Peggy after a while either marked the top of my leg as her territory, or her water broke (I hope it wasn’t the latter, not good on tiny squirrel delivery!). As she had been there for MANY peanuts I told her that I was going now to find other squirrels and she was happy to come and I took off my brakes and prepared to roll.
Well she still seemed happy to come, just as long as she could keep eating, so, I slowly wheeled away with Peggy chowing down the whole time. I was very slow and careful, I mean, I had a pregnant mammal on board! She later jumped off a few times, and then would come back, climb up on the wall and jump back into my lap when she wanted more. I was the definitive “gravy train” for her but finally after bingeing for quite a while she grabbed two peanuts and disappeared.

So I played with some greys who kept emerging out of the bushes to grab peanuts and then disappear again. This is when Psycho showed up. I mean when someone runs 200 yards and then leaps into your lap, sniffs your groin, grabs a peanut and then bounds off, and does this a FEW times, I was pretty sure that my “bad side of the track” family member was back. Eventually, because I had rolled away, he started crawling all over Linda (literally) before stealing the peanuts out of the hand holding the camera. What a scamp!

On the way out I found another few greys who wanted some peanuts but I am greedy, I want the contact. I am not a peanut vending machine, I need to FEEL the love, or in some cases the “I’m kind of scared because you are 100 times larger than me BUT I will eat from your hand.” As you can see here, afterward it all I was pretty traumatized by the whole event – I mean, green fields, flowers, squirrels, the love pouring toward me – it was just what my snow-globe brain needed (shake it again and see what I say!).
After my nap (no movie in flight, sorry!), I went up to play badminton. There was a mixed couple there from Saturday who refused to play with Cheryl and I (cause we were in wheelchairs) and here, with 24 people, they kept refusing to play except with two friends as a “group of four.” It is odd, because if they refused to play with someone based on race – that’s a bigot, what is it when guys won’t stop playing because there are a couple GIRLS waiting, or refuse to play with the wheelie? First, it isn’t 3rd grade anymore, we aren’t chasing you for kisses (oddly I think these guys would rather bask in their testosterone grunting badminton slams than GET kissed, it was THOSE kinds of sports guys), and second, grow the fuck up! Everything doesn’t revolve around you and this is RECREATIONAL BADMINTON, not “Badass Badminton” or “Only with my friends and lover!” Badminton. The woman actually said to me, “I know you, I was here on Saturday.”

I replied, “That’s odd because I was here for two hours and I never played you. Or was that you with your legs up in the air?” (actually that’s what she did with her LOVER between the 5 point matches, rolled on the floor with her legs in the air). See, I remember THAT.

Anyway, Linda and I played two mixed doubles together and they were close but I managed a few more, “Hit directly at Linda’s head” and service points and ended up winning. I also told my male partners that if they thought a hit might smack the back of my head or smash me with their racket…..TAKE THE SHOT!

After that we split up and I ended up on this team with “The best player here, right..” and the Badminton Director, Tim as my opponent. I was with Victor, who had been Linda’s partner earlier, but I felt he had been “holding back.” So I told him, none of that and we talked position strategy. It was a HARD game, I mean Linda started after me and finished before we finished, as we would fight for every point. Well, at point 10, I went for a smash and my head exploded.

Literally, I was just holding my head, falling out of the chair and shuddering. I must have screamed as Linda was there and she put an ice pack in my bra, and kept me in the chair. I kept motioning them to put the racket in my hand but I couldn’t hold it. And then I could and it felt like the left side of the back of my head had dropsy (does that happen?) and couldn’t see very well on the left eye. And I couldn’t speak for a bit and when I did, it was in Japanese. Luckily, Victor speaks Japanese, so it was “Domo”, “Dozo” and “Ju-Ichi” for the score and “Summimesen” on our side of the court until we were up 12-10. And then the English came back and we got 14 and then they did and we chose to go for three point finish.

It was really tense and Victor served a great serve and slammed the return. The next point everyone including me was doing smashes back and forth and I saw that both of them were way back due to Victor’s smashing and when it came to me I did a little “boop!” over the net and the “great guy” dove full out sliding on the floor and just missed it. And we were at game point again. There was some play and a birdie out and we all congrats on the great game because it was – it is fun to play really focused like that, and I had to change the way I was wheeling a few times because they tried to use my chair as a block.

I explained that I had been in hospital due to seizures and thought I would quit now if that was okay and they were okay with that. Well except Tim (from Saturday) who was like, “Yeah, you need to test your limits!” which I thought was kind of odd, but compared to, “Um, you’re not playing again without a doctors note” I can live with that. And that was my day. And there is a night worker here I am suppose to remember but I don’t really. And my head still hurts in a funny way, so maybe I WILL rest tomorrow. It is a lot easier to think now, but I still get headaches all the time (like all day) because it is like taking the “Advanced Class” where they give you two weeks of info each day, only this info is my life. So I like talking to squirrels and the people on the Badminton Court as I didn’t know them and I could say, “Yeah!” or “Good!” and that was enough. And I was enough, and someone and they liked me. And they didn’t know that medicos littered on me and only cared if I could smash back at their face. Which is always a useful life skill I think. Nite.

By the way, I have decided I will give myself a week to get back to "fully operational!"

I wonder which movie I will get tonight.

25 comments:

Raccoon said...

it sounds like your memory is coming back in good order.

Relax. That's a good word. When you start getting upset with people at Blue Cross, start counting to 10 before blowing up at them? Or 20 or 30? Gives you time to calm down.

And squirrels! Happy squirrels! They don't care that you were just in the hospital, they just care that you came to visit them! Well, and brought them nuts...

Raccoon

cheryl g said...

Woohoo! A visit from Psycho - the little hoodlum. I am glad you and peggy got along so well.

Is it a snow globe brain or a Magic 8 Ball brain?

OK sis, the explosion and headaches are trying to tell you something. I would really like to get to spend more time with you so how about you take it easy and avoid an aneurism. Time to talk to your doctor again - a CT Scan might be a good idea.

You're going to allow a whole week to recover - as in 7 days? Who are you and what did you do with Elizabeth McClung? Seriously, I am glad and hope you do take it easy on yourself but it is rather out of character.

Hugs Sis!

Elizabeth McClung said...

Raccoon: I don't know, I have more memory which helps me fake it better. Linda says I don't look confused as much as yesterday as in "What is going on and who are these people" confused.

I dunno, Relax? Does that mean we fight oppression REALLY slowly? I think I supposed to be in bed, which I was yesterday, because I was too ill to be out of it.

Yeah, like the squirrels, just the, "No, you climb outside the pant leg, no OUTSIDE....OUTSIDE!!!!!! OH GOD!"

Cheryl: I was so mad becuase Linda was taking pictures of FLOWERS, when Psycho was going all possessive on me and so she promised to take the picture next time he appeared, bounding across the field, only, he ignores me and heads right toward HER. Easy pickings!

I don't know, I don't seem to have answers, I think I am just the "shake again"

I would have got a CT scan that night if the woman hadn't barricaded herself in - we have a call to our doctor and will call him again - he is trying to leave on vacation too.

As for recovery, I actually count from Saturday night, so I have like......4.5 days of recovery left.

Stephanie said...

It's good to see your Psycho squirrel friend has returned. But I think Peggy may be wanting to go steady. Only the first date and she is practically co-habiting your chair!

Maybe she is just looking for a sugar momma to supply her squirrelettes so they can grow strong and maybe get into Squirrelly U.

SharonMV said...

So glad you went to visit the squirrels! Vicarious fun for me. I really need to get outside & see some flowers & birds & squirrels. We have a few ground squirrels here - sometimes they come up on the deck. They're cute , but don't have the big fluffy tails.

Having Lupus affects my brain sometimes, but in mild to moderate ways. Sometimes I can't think of the right word to say to finish my thought. It used to be that I'd think really hard & come up with the word with hardly a pause, but it was extra hard thinking. Now, I just explain or describe the thing represented by the missing word - still a lot of extra thinking energy. If I'm sicker or very tired I just don't bother to think that hard & use all that energy (unless it's an important conversation( & just say "you know, that thing" or just leave my sentence unfinished. Sometimes vocabulary isn't that important to me. And this from a woman who can (or could) read 6 languages - three of them dead languages(Greek, Latin & Sanskrit).

Once, I did have a major event/illness that affected my mind more seriously. I'll tell you that story another time.

Sharon

rachelcreative said...

How to relax and fight oppression at the same time ...? Think Yoko and John Lennon in bed protest maybe?

I love your squirrel outings. How wonderful that Pyscho chose this day to visit after his long absence.

Ruth said...

"I dunno, Relax? Does that mean we fight oppression REALLY slowly?"

::nodding:::

Evil Lunch Lady said...

Squirrels rock! I love watching the nutcase ones, lots of fun!

Glad to see you got some fresh air!

Have a great day:)

Neil said...

Relax. You keep using that word. I do not think it means what you think it means.

Beth: I believe you have enough determination that you will succeed in feeling much improved by the end of this week.

But don't force yourself too far, Beth. After all, the challenges are supposed to come from other people, not from within yourself.

Peggy wasn't necessarily marking your leg, dear. Squirrels are not known for their continence. Last year, my son filmed a squirrel climbing his friend's leg and looking in his shirt pocket. when they looked at the video, they noticed that halfway up the leg, said squirrel stopped to relieve itself.

Neil said...

Okay, Beth, the cartoon world is hereby dedicated to you today, een if it's only one cartoon. If you haven't seen it, or don't usually, check today's Bizarro at http://seattlepi.nwsource.com/fun/bizarro.asp

And I forgot to mention that your former writing style is returning with this post.

Happy squirrels. Their Queen is back!

Lene Andersen said...

I'm going to get on your case before I rave about the squirrels. Listen to Cheryl. Listen to your body. That kind of headaches and explosions are not normal and should be listened to (and clamouring for a CT scan would also be good). If your head explodes under certain kinds of activity, STOP! Seriously. I know you're an overachiever, but going for another scary episode less than a week after the first is a bit much. I will come out there and sit on you if you don't slow down. 'Kay? (yes, I know - I weigh less than 100lbs, sitting on you won't stop you, but it might block your view?)

Loved those pictures of you in the park. Peggy is incredible - so damn cute. Glad to see Psycho's back. Wish I'd been there to see it.

And you're writing like you used to again. Still, take it easy. There's no rush - things will come back.

Everything is... illuminated. Love that.

FridaWrites said...

Certainly the squirrels seem to remember you. And eventually that mama squirrel may be bringing new little ones along. I definitely know that pregnant must-eat-now feeling.

Ooh, medical litter, I don't like it. Especially when docs don't wipe up all the betadine they spill or remove the ink they mark all over you, only to leave others later wondering why someone's been scribbling on your legs. Or with electrodes that you've missed.

Perpetual Beginner said...

Your writing is much more like your usual style today, which fits with what it sounds like your memory is doing.

Relaxing while active or upset is a tricky business. You're actually more flexible and faster (both mentally and physically) when relaxed, so you can fight better. But it's really hard to do!

Yay, squirrels!

Dawn Allenbach said...

If you welch on the week of relaxation . . . don't make send Cheryl after you.

Relax. Watch TV. Watch movies. Feed squirrels. Get a CT.

Dawn Allenbach said...

No, you do NOT count from Saturday. You start from when you made the promise.

saraarts said...

SO SO CUTE. Thank you so much!

"If you smell of peanuts, they want to know you."

With humans, I find it pays to smell of cake.

Veralidaine said...

YAAY! Psycho is back! My favorite manly-man squirrel who sniffs crotches, steals food, and leaves. I like Peggy, too. I think I need some squirrel friends, but the park authorities around here look somewhat less than kindly on making the squirrels friendly because then they wander up to the rednecks who don't like them and beg for peanuts, and get hurt or killed. Maybe I can raise a baby squirrel for a wildlife rehab center.

I am glad you were feeling up to playing badminton and that you will be taking a rest (though it IS out of character). And yes, you did send me the cat bus postcard, with a sticker showing you kissing Linda's hand in a Japanese photo booth. Take care of yourself, cuz- more squirrel pictures soon, yes?

Donimo said...

Wow, it's really nice to tune in today to find your writing and humour are flowing much like before. I didn't expect to read about you playing an intense badminton match! It must have felt great to be so focused and in your body in a good way.

I'm glad the sun actually made an appearance and your squirrel posse, too. Doing your squirrel thing is an example of relaxing. See? It's possible.

The two lovely, androgynous Japanese postcards you sent Sarah and me are sitting on my desk. I was going to send you a photo of me looking all boy-boy with my long-ish hair but my hair dresser kinda butchered my hair and I've lost that Yaoi feeling (and now it's gone, gone, gone...whoah oh whoah).

Gaina said...

You have/had 'word salad' - it's also known as Receptive aphasia. But I think 'Word Salad' is more fun :P.

But hey, I thought you said something about Green Squirrels at the beginning of your blog, so what do I know? haha

Elizabeth McClung said...

Stephanie: I know, it turns out that I am the 'love them and leave them' type - that *I* am the one with commitment issues as after a while, having a squirrel ride around on your leg while your feed it peanuts does limit me a bit.

She is certainly doing what she needs to get a lot of carbs or whatever are in peanuts (calories).

SharonMV: I had a bad day today but it was saved by a squirrel. If you want to talk about that story today would be a good day as I am having a "bad day" after yesterday's good day, and I went out alone and had some bad experiences, but in the end a squirrel came and I fed it and that I know how to do.

What you describe with Lupus is what I have with Parkinson's brain fog (day to day), where you enter a zone of, "White thing, people value..."

Language is the only way I have to communicate, since I haven't run into an ASL signer yet in town. But I know what you mean about tired days and I need to be around people like Linda who can tell by my confused or puzzled look when to just let things go and try again later.

Rachelcreative: it was raining when we left but sunny when we arrived. So that worked out well. I will be in bed for a while now as I was not sleeping last night because of the pain. So I hope I can sleep this afternoon. Also portable computer set up to reeducate me on North American culture through watching Crossing Jorden and ER (this is a representation of North America: autopsy work?)

Ruth: I can't tell if you are making fun of me or not. But it made me laugh, so thank you. I haven't laughed in a while. Well, except when I slammed the birdie and it got caught in Linda's hair and she kept turning to see where it had gone.

Evil Lunch Lady: Thanks, I am too tired/confused to go by myself but Linda was kind to take me and that helped a lot, I knew there was life outside and it was good - not so sure on humans, working up the mammal sizes.

Neil: I don't know what "relax" means. Seriously. And I think I fell into the trap of "I feel okay these 5 hours so now everything is normal" and actually this is a bad day and I am talking oddly and people are frustrated with me (including me) and I can't see out of one eye. So I don't know if "will to power" is going to work as one friend said with brain things there is not straight path to cure, it is up and down. And I am already feeling a wee bit motion sick.

As for peggy, with all the peanuts and all the babies, she probably doesn't have a lot of bladder room left.

Lene: Believe me, I am listening to them, they are REALLY painful and take up a LOT of time. I just don't know how to stop them. And I thought doing something "Active" - you know like they tell you in the papers, "An active lifestyle is a HEALTHY lifestyle" - only sometimes it isn't. OW!

I wish you were here too. The squirrels (or psycho) would crawl right over you. I think maybe like spring, you could watch my mind open up and bloom again. Right now, it feels like it needs watering.

Fridawrites: I am just glad the pregnant Peggy trusted me enough to come and use me as a couch and food source.

I find that EMT's and doctors are total litterbugs, I guess they have someone to clean up the hospital but who cleans up me? I had many, many electrodes all over me and now the adhesive marks.

Perpetual Beginner: it helped with the squirrels and the sleeping as I controlled the stimulous - I went into town today and it was not good, people thought I was on drugs because of the way I speak in a halted fashion and mixing up words or using words the wrong place.

Just now my home care called becuase of my siezures, I hope they do not take away my care. Why is it when things go bad they don't tell you what is going on. A friend told me there are good days and bad days an no one, not even an Elizabeth McClung can escape that, as I am finding out. Why did the neurologist, knowing I was missing memories just send me home. Is that normal? Did they assume becuase of my autonomic failure and inability to have normal dialation that these seizures/TIA's need only be limited in damage - but what about me, where is the booklet: "So you just seemed to have lost part of your brain...now what?"

Dawn: I got a box set of TV - Crossing Jorden - I figure watching them cut up dead people will cheer me up.

And if I count from Saturday, the week I have to wait to get better will go faster - ergo I will get better faster?

Sara: Um, I haven't tried to entice humans into my lap with cake. But I may, if it isn't illegal.

Veralidiane: Yes, it was nice to see Pyscho in all his uncontrolable aggressive glory. Many more pictures, and a movie of Psycho getting the moves on Linda.

I wish you had a little black squirrel to raise in your sanctuary. Cat Bus, I remember. I am getting loose with words now as I am tired and .......sorry....

Donimo: I had a good afternoon and then the endorphins helped me be articulate I think as I am not so much today. But better than two days ago, I just want to be twice as good as the last day and now I go back it is frustrating.

I sent you the picture of the androynous guy who was "packing" it was like "drag kings" making out or something. I wanted to make sure you got something you liked, I hope.

Squirrels were relaxing also because Linda had my back, she knew when I was tired and wheeled me back, she got me ice cream - she was like my portable brain, like the way people have portable hard drives. Which meant I could do what I could do and she did the rest. And at badminton, I like that - the whole, hit the birdie, drop the birdie is a very small skill set and info set and the parts I don't remember like names and certain rules they are very flexible about.

Gaina: Thank you, yes, as sometimes people speak and I say, "I do not understand you." and they think they are slurring or speak louder when I am saying, "My brain cannot understand what you are saying" and I guess when I speak sometimes that is true too.

SharonMV said...

Yes Elizabeth, it is part of the brainfog that I was describing. People with Lupus & other chronic illnesses (more & more I am learning) have this. it was interesting to me because this specific symptom is connected to language. Like you might say a different word that sound similar but may or may not be related -eg extradite when you're trying to say extricate or magic instead of music. Your brain tries to fill up the gap. Or sometimes you just get the gap - you know the right word is in you, just takes more time & harder thinking to find it. It's a kind. More general brainfog stuff is getting lost when your driving in a familiar area -again just too tired to think. You can tell in my posts - my spelling gets bad when I'm tired

You know, people even people in my family think I'm the "quiet one". Actually, I'm quite talkative - most people have never known me before I got sick & others just have forgotten

I'll tell you about my "big bad" experience later tonight, if I can.
I'm sorry if bad things happened today. I know this is a difficult & sometimes scary thing you're going through. I hope I can be a little bit like that squirrel & make your day better.

Sharon

Dawn Allenbach said...

If only it worked that way, but it doesn't. One week from your declaration. No less. I think there are a few here who will back me up.

Neil said...

Okay, Beth, I'm home from work, have set up a new tent to see how it looks, and I've calmed down enough to let you know something. NOW I *GET* it! Thanks for the emails at work today, dear. Sorry for any stress I caused you this afternoon.

For everyone who's not Beth: I volunteered to help with a 3/5/10K walk and run that's happening this month. Because of Beth's experience, I asked about porta-potties, and was told there are none on the route because there are two public washrooms in the park the run goes through, and washrooms in a hospital for the 10K run. And there's the washrooms in City Hall at the start/finish line.

Beth sent me an email at work today supporting the need for more porta-potties; and it happened that one of the run organizers was in the building, so I showed him Beth's email. He dismissed it VERY arrogantly as overly negative (and asked if she was coming to participate), assured me that everything is taken care of, and even went so far as to say that people have had to urinate in public before and will again in long races.

This man is a marathon runner, and he was so flippant, so arrogant, and he so completely dissed Beth's and my concerns as he waltzed out of the building that I was completely stunned, and I honestly saw red as he left. I guess there's a first time for everything...

He didn't even have the tact to thank me for my concerns, and assure me calmly that washrooms and aid stations are looked after. I walked a picket line with this man for a week in 2005, I respected him. Until today. He was so cock-sure of himself that I have absolutely no respect for him at all any more. I am ashamed that the man is my coworker. Maybe he trained at the Times Colonist run. Maybe he trained Jason for Beth's benefit.

But now, I think I have seen how people with disabilities are treated. And I'm sorry; sorry that Regina is so ill-prepared and unwilling to assist you; sorry that I probably won't make much of a difference on my first try in helping with this so-called fun run; sorry that some of us treat you like crap.

And Beth dear, I'm sorry to highjack your comment section for this rant. I just had to get it off my chest.

Now it's 22:30 and the local squirrels have gone to bed, so I can't go out to feed them and relax. Maybe the cat will help with purring therapy.

May the gods help you rest well this night, Beth. The in-flight movie may feature squirrels. Hugs to you and Linda.

lilwatchergirl said...

Squirrels and badminton. All the best things about your posts, in one go. Cheers!

Marla said...

Animals, including squirrels are the best therapy. M's guinea pigs are wonderful. I think they have a spirit about them that calms M.